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Unique aspects of caring for dying children and their families

Divisions of Hematology/Oncology/Stem Cell Transplant and Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Sandra Davies, RN

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Linda Lazar, RN

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Bonnie Crawford, LSW

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Lynda Tucker, RN

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Ann Boughner, RPh

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Lisa Richter-Beck, MSN, RN

Division of Home Health Care, Children’s Hospital Medical Center, Cincinnati, Ohio

Pediatric hospice has become an important service for children and their families in the past decade. In this article we present unique aspects of StarShine, the hospice of Children’s Hospital Medical Center in Cincinnati, Ohio. Length-of-service data demonstrate the need to find innovative ways of encouraging earlier referral to hospice. Several specialized aspects of care, such as long-term bereavement, pet visitation and social services for the family are presented. The initiation of a novel in-home pain management program is described. StarShine has not followed an adult hospice model, and as such, we discuss those unique aspects of dying pediatric patients and suggest specific solutions and interventions designed for children.

American Journal of Hospice and Palliative Medicine®, Vol. 17, No. 5, 305-311 (2000)
DOI: 10.1177/104990910001700507


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