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American Journal of Hospice and Palliative Medicine®
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Patient and caregiver satisfaction with end-of-life care: Does high satisfaction mean high quality of care?

Linda L. Steele, RN, PhD, CS, ANP

Adult Health Nursing Department, College of Nursing and Health Professions, University of North Carolina at Charlotte, Charlotte, North Carolina

Beth Mills, RN, MPH

Charlotte, Charlotte, North Carolina

Marty R. Long, MPH, RHIA

Charlotte, Charlotte, North Carolina

Gloria A. Hagopian, RN, EdD

Adult Health Nursing Department, College of Nursing and Health Professions, University of North Carolina at Charlotte, Charlotte, North Carolina

The purpose of this study was to determine patient and caregiver satisfaction with a hospice program of care. The setting for the study was a home-care hospice in the southeastern United States that provides a full range of services for patients with life-limiting illness and supportive services for family caregivers. Two Likert-type instruments were used to determine satisfaction with staff, communication, education, information provided, symptom management, promptness with service, and overall satisfaction. Some 321 patients and 443 caregivers completed surveys over a two-year period of time. Data indicates the majority of patients and their care-givers were very satisfied with hospice services and the care they received. Providing quality care at the end of life is the goal of hospice. Satisfaction with delivery of care, management of symptoms, and communication with staff are all components of quality care and contribute to quality of life.

Key Words: caregiver satisfaction • end-of-life care • home care • hospice • patient satisfaction • quality of care • quality of life

American Journal of Hospice and Palliative Medicine®, Vol. 19, No. 1, 19-27 (2002)
DOI: 10.1177/104990910201900106


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Home page
AM J HOSP PALLIAT CAREHome page
P. J. Miceli and D. E. Mylod
Satisfaction of families using end-of-life care: Current successes and challenges in the hospice industry
American Journal of Hospice and Palliative Medicine, September 1, 2003; 20(5): 360 - 370.
[Abstract] [PDF]



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