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American Journal of Hospice and Palliative Medicine®, Vol. 22, No. 3, 188-194 (2005)
DOI: 10.1177/104990910502200307
© 2005 SAGE Publications

Validation of the Caregiving at Life’s End questionnaire

Jennifer R. Salmon, PhD

School of Aging Studies, Florida Policy Exchange Center on Aging, University of South Florida, Tampa, Florida

Jung Kwak, MSW

School of Aging Studies, Florida Policy Exchange Center on Aging, University of South Florida, Tampa, Florida

Kimberly D. Acquaviva, PhD, MS

George Washington University, George Washington Institute for Spirituality and Health, Washington, DC

Kathleen A. Egan, MA, BSN, CHPN

The Hospice Institute of the Florida Suncoast, The Center for Hospice, Palliative Care & End-of-life Studies, University of South Florida, Tampa, Florida

Katherine Brandt, MS

National Hospice and Palliative Care Organization, Alexandria, Virginia

The researchers in this study developed and validated a questionnaire to measure the needs of end-of-life (EOL) caregivers. The model is used to facilitate meaningful and supportive experiences for both the patient and caregiver. The questionnaire was developed using existing scales of meaning, self-acceptance, burden, and gain as well as new scales of caregiver comfort, importance of caregiving tasks, and caregiver closure. The sample included 34 current and 17 bereaved caregivers affiliated with The Hospice Institute of the Florida Suncoast. The scales performed well in terms of concurrent validity, internal consistency, and reliability.

Key Words: caregiver burden • closure • comfort • end-of-life care • hospice • needs assessment • questionnaire • self-acceptance • validation


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