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Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: Results of a longitudinal study

College of Nursing, New York University, New York, New York

Xiang Y. Ye, MS

Division of Biostatistics, New York University, New York, New York

Christina McSherry, RN, MA

College of Nursing, New York University, New York, New York

Miriam Calabrese, MA, APRN, BC-PCM

College of Nursing, New York University, New York, New York

Valerie Parkas, MD

Infectious Disease Department, Mount Sinai Medical Center, New York, New York

Maria Gatto, MA, APRN, NP, BC-PCM, BC-AHN

College of Nursing, New York University, New York, New York

Based on a longitudinal, quality-of-life study, this article presents pilot data regarding the spiritual well-being of patients with advanced cancer or AIDS and their family caregivers. Data include similarities and differences between the patient and caregiver populations and patient/family caregiver dyads as well as trends with regard to changes in spiritual well-being during the illness and dying process. The reliability of the Spiritual Well-Being Scale¹was examined for patient and caregiver groups, as was the relationship between selected demographic variables and spiritual well-being. Implications for practice are discussed.

Key Words: end of life • AIDS • cancer • caregiver • quality of life

American Journal of Hospice and Palliative Medicine®, Vol. 22, No. 5, 349-362 (2005)
DOI: 10.1177/104990910502200508


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