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American Journal of Hospice and Palliative Medicine®
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Article

End-of-Life Decisions: Family Views on Advance Directives

Ellen W. Bernal, PhD, CIM1*, Catherine A. Marco, MD, FACEP2, Sue Parkins, MD1, Nancy Buderer, MS, CIP3, Dorothy Thum, FACHE, RDLD, RSM4

1 St. Vincent Mercy Medical Center, Toledo, Ohio
2 University of Toledo College of Medicine, Toledo, Ohio
3 Biostatistician and Research Consultant, Oak Harbor, Ohio
4 Mission and Values Integration and Mercy Health Partners, Toledo, Ohio

* To whom correspondence should be addressed. E-mail: Ellen_Bernal{at}mhsnr.org.


  Abstract
A cross-sectional survey was administered to family members of patients who died at 1 of the 5 Catholic institutions comprising Mercy Health Partners, a health care system in Ohio, to determine their opinions about patient and family participation in decisions about end-of-life care. Among 165 respondents, 118 (86%) of 138 agreed that the family was encouraged to join in decisions and 133 (91%) of 146 that their family member’s health care choices were followed. Most agreed that nurses answered their questions (93%, 141/151) and that the doctor communicated well with family members (83%, 128/155). Seventy percent (107/152) indicated that their family member had at least 1 advance directive. There were no differences in whether health care choices were followed when patients with formal advance directives (92%, 92/100) were compared with patients without formal advance directives (88%, 35/40). A unique survey instrument can be used to measure family perceptions and opinions of participation in decisions about end-of-life care.

First published on June 20, 2007, doi:10.1177/1049909107302296

American Journal of Hospice and Palliative Medicine® 2007;24:300.

A more recent version of this article appeared on September 1, 2007

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This article has been cited by other articles:


Home page
 AM J HOSP PALLIAT CAREHome page
B. Bergman-Evans, L. Kuhnel, D. McNitt, and S. Myers
Uncovering Beliefs and Barriers: Staff Attitudes Related to Advance Directives
American Journal of Hospice and Palliative Medicine, October 1, 2008; 25(5): 347 - 353.
[Abstract] [PDF]


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