Are There Racial Differences in Attitudes Toward Hospice Care? A Study of Hospice-Eligible Patients at the Visiting Nurse Service of New York
Peri Rosenfeld, PhD1*,
Jeanne Dennis, MSW2,
Suzanne Hanen, MS, GNP, APRN-BC, CHPN3,
Ernesto Henriquez, BA1,
Theresa M. Schwartz, BA1,
Lyla Correoso, MD4,
Christopher M. Murtaugh, PhD1,
Alan Fleishman, MD5
1 Center for Home Care Policy & Research, Visiting Nurse Service of New York
2 Hospice Care, Visiting Nurse Service of New York
3 Palliative Care Project, Hospice Care, Visiting Nurse Service of New York
4 Hospice Team, Visiting Nurse Service of New York
5 The New York Academy of Medicine, New York
* To whom correspondence should be addressed. E-mail: peri.rosenfeld{at}vnsny.org.
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Abstract |
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Research on African American and white attitudes, perceptions, and knowledge of hospice care has focused predominantly on patients and providers in institutions and community-based care settings. Little is known about patients receiving home health services, despite growing trends toward noninstitutional care in the United States. This study of home health clients who are eligible for hospice, but not currently receiving it, found few differences between racial groups with regard to attitudes about end-of-life care. An alarming proportion of African American and white home health clients held erroneous ideas about hospice care and had not discussed this option with their providers. These findings suggest that increased referrals to home-based hospice care among home health clients depend on the availability and professional dissemination of accurate, spiritually sensitive information.
