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American Journal of Hospice and Palliative Medicine®
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Article

Developing a Pediatric Palliative Care Program: Addressing the Lack of Baseline Expenditure Information

Caprice A. Knapp, Ph.D*, Lindsay A. Thompson, MD, MS, W. Bruce Vogel, PhD, Vanessa L. Madden, BsC, and Elizabeth A. Shenkman, PhD

University of Florida

* To whom correspondence should be addressed. E-mail: cak{at}ichp.ufl.edu.


   Abstract

An estimated 500 000 children annually cope with life-limiting conditions expected to lead to premature death, but little is known about their health care expenditures at the end of life. This information is crucial for health planners to propose pediatric palliative care programs. This study aims to estimate predicted health care expenditures for Medicaid-eligible infants and children across several health service categories. Across these categories, infants and children were predicted to spend about US$110 000 and US$62 000 at the end of life, respectively. About 5% of infants and 8% of children incurred hospice expenditures. Results from the multivariate models suggest that black, non-Hispanic children are less likely than white, non-Hispanic children to use hospice care. Baseline expenditure information from this study can be used to develop integrated pediatric palliative care models. Our findings also suggest that many more children could potentially benefit by using hospice care at the end of life.

First published on December 1, 2008, doi:10.1177/1049909108327025

American Journal of Hospice and Palliative Medicine® 2009;26:40.

A more recent version of this article appeared on February 1, 2009


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